This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease
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AGM on Saturday
The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease
AGM – 15th July
News: Our 2023 AGM will be on Saturday 15th July, at 10:30.This will be through Zoom to allow as many members to attend.#HSP #RareDisease #HereditarySpasticParaplegia
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Help us with a new year resolution?
If you’re thinking about new year resolutions, think about offering some time to help us deliver our mission statement.
HSP in Waterloo Road
Lucy Begg portrays people with disabilities in a positive way on BBC Waterloo Road
Happy New Year
Hoping everyone in the #HSP world has had time to relax and enjoy the holidays. Wishing everyone a happy new year! #HereditarySpasticParaplegia #RareDisease
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Young People with HSP – Call for help
A study at Sheffield University seeks to improve care for young people who are living with HSP.
Accessibility and Electric Cars
There is a useful guide on the AutoTrader website which gives advice for people with disabilities interested in getting an electric vehicle.