Young People with HSP – Call for help


A study is being carried out at Sheffield University. They are looking how care can be made better for young people and parents / carers who are living with Hereditary Spastic Paraplegia/Paraparesis (HSP).

They are seeking people who are 13-25 years of age with HSP, or a parent / carer of a young person with HSP. Their study seeks to:

  • hear what living with HSP is like when you are young,
  • understand how to improve health care.

They will ask you questions as an interview, which will take about 1 hour. If you are interested in this study please drop us a line so we can pass on your details.

Comments 2

  1. Hi my name is Marc. I am a key worker for a young man with hsp 11 we live in Devon. He has matrix to help walking and light physio but no more . Are there people in Devon that we can reach out to with the same condition.

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