Young People with HSP – Call for help

News

A study is being carried out at Sheffield University. They are looking how care can be made better for young people and parents / carers who are living with Hereditary Spastic Paraplegia/Paraparesis (HSP).

They are seeking people who are 13-25 years of age with HSP, or a parent / carer of a young person with HSP. Their study seeks to:

  • hear what living with HSP is like when you are young,
  • understand how to improve health care.

They will ask you questions as an interview, which will take about 1 hour. If you are interested in this study please drop us a line so we can pass on your details.