You may remember Tom Bell, who raised money for us last year with his Viking run. He is now working to nominate our charity as Charity of the Year where he works. We would be alongside the Motor Neuron Disease association – HSP is a type of motor neuron disease. There is potential for this to raise an excellent amount of money for us. But, there is only a couple of weeks available for that nomination to be made.
It would be very useful to hear from any sportspeople with HSP (most likely in the UK). We seek those who could be able to be an ambassador for HSP and the group, and be able to support the bid.
If you can help please e-mail our chair: chair@hspgroup.org
Tom also plans to run a marathon this year, dressed in his Viking gear again!