The video of Dr Channa Hewamadduma’s presentation is now on our YouTube channel
Digital Meeting, 1st August
Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Sat 1st August at 11:00 (BST). All are welcome to attend!
AGM on YouTube
The recording of our successful digital AGM is the perfect launch for our YouTube channel.
Presentations coming up!
The three presentations advertised at the AGM are coming up, with the first one tomorrow – Saturday 25th July, at 09:30. We hope to be able to get these on YouTube afterwards. If you’re after details of how to access these, please drop us a line.
Zooming success
We had another really good Zoom test meeting at the weekend. We’re going to run one more test (on 27 June) and then we are ready for our AGM on 4 July!
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Latest Newslink now live
The latest newslink magazine has been published. This article is our biggest one to date, including: A tribute to our former chair David Pearce and his generous bequest, our Chair’s column with further details on Coronavirus, new awards for the group, the newly formed committees, and a call for help.
New LinkedIn page
Great news! We are getting a presence on LinkedIn for the HSP Support Group. This is another avenue to make us more visible and to share news.
Zoom to the rescue
Today the trustees held their first on-line Zoom meeting. Having done a test with Zoom and Skype we decided that Zoom had better quality and it was easier to set up meetings in advance. The meeting worked really well, and because we didn’t have to travel to the same place it didn’t take all day or incur any expenses, but we did miss the opportunity to share a beer.
Coronavirus statement
There has been much uncertainty around the level of risk which people with HSP might have with coronavirus. Our Chair wrote a letter to members to explain our position both in respect of meetings and giving relevant extracts from the Government advice.