Hereditary Spastic Paraplegia links
Rare Diseases Organisation (NORD) description
A clear and current description of HSP from an American website: https://rarediseases.org/rare-diseases/hereditary-spastic-paraplegia/
Adam's HSP Journey
One of the members of the HSP Support Group is chronicling his "journey into HSP". He also is helping the HSP effort by surveying how our members deal with their condition: http://hspjourney.blogspot.com/
Link A Summary of Research into HSP (2012)
A clear summary of the state of HSP Research (2012): http://hspgroup.org/images/general/2012%20state-of-hsp-research.pdf
HSP Awareness
This website is maintained by an HSP Group member: http://hspawareness.wixsite.com/spasticparaplegia
American SP Foundation page on therapies
American Foundation web page discussing exercise as a treatment for HSP: https://sp-foundation.org/understanding-pls-hsp/treatments.html
NINDS Hereditary Spastic Paraplegia Information Page
National Institute of Neurological Disorders and Stroke information page: https://www.ninds.nih.gov/disorders/all-disorders/hereditary-spastic-paraplegia-information-page
eMedicine - Hereditary Spastic Paraplegia
Article by Nam-Jong Paik, MD, PhD: https://emedicine.medscape.com/article/306713-overview
TherapyRoute.com - Worldwide helplines
Worldwide helplines, crisis lines and suicide hotlines: https://www.therapyroute.com/article/helplines-suicide-hotlines
Patient Journey Hereditary Spastic Paraplegias (HSPs)
Patient Journeys are info-graphical overviews that visualize patients’ needs in the care of their rare disease: https://www.ern-rnd.eu/patient-journey-hereditary-spastic-paraplegias-hsps/
Genetics Alliance - seeking a rare diagnosis
Information from the Genetics Alliance for people in England who are trying to get a diagnosis: https://geneticalliance.org.uk/support-and-information/resources-for-individuals-and-organisations/seeking-a-rare-diagnosis/