New foreword for meeting welcome pack
Wales area Zoom meeting report
9th May 2021
The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.
Colchester Zoom meeting report
2nd May 2021
We held our first gathering on Zoom on Sunday, 2nd May. This initial get together was an experiment for those of us who regularly attend our usual face to face meetings at Feering Community Centre, near Colchester.
Midlands area Zoom meeting report
19th April 2021
We had a super Zoom chat at 3pm on Sunday 19th April 2021. No new members this time, but we enjoyed lots of discussion around a wide range of topics.
Milford Zoom meeting report
17th April 2021
We managed a Zoom meeting on the 17th April!!! Although booked in November 2020, the death of Prince Philip, determined our April meeting may not be possible, due to his funeral.
Webinar: Improving care of rare disease patients in Europe
European Reference Network for Rare Neurological Diseases (ERN-RND) webinar on improving care of rare diseases patients. 23rd Feb.
Midlands – Zoom meeting
Midlands
Virtual meeting via Zoom, for those who would normally attend the Midlands HSP Support Group meetings.
Midlands Zoom meeting report
31st January 2021
We shared a lovely Zoom with 12 UK members, one completely new to the Support Group, some from different regions, and several of our regular members too.
Coronavirus – Update on Meetings
Trustees decided at a recent meeting it was inappropriate to re-start face-to-face meetings until at least after the flu season.
Digital Meeting, 1st August
Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Sat 1st August at 11:00 (BST). All are welcome to attend!