Don’t forget – On Saturday 1st August at 11:00 (BST) we have our second digital presentation, from Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Members have a link to this in their e-mail, others please ask. All are welcome! #RareDisease #HereditarySpasticParaplegia. We would love to see you there.
Channa will be will be talking about the work that him and his team undertake in Sheffield, looking at some of the insights and learning they have gained from their approaches to working with a large cohort of HSP patients. He will also outline the types of work that they are looking to cover in the future.