We are looking forward to holding our Milford meeting on Saturday April 23rd from 3pm until 6pm.
Calling all people of Wales, Scotland and England…
Some of us will be online to Senedd, Holyrood and Westminster in a virtual reception (replacing the previous physical events). The British Rare Disease Strategy has already been produced and yet has to be ratified by the parliaments of Wales, Scotland and N Ireland.
Sheffield – Zoom meeting
Join us for a couple of hours to make friends and have a chat! Please contact the organiser for more information and to register for the event.
Wales and Bristol Area Zoom Meeting
This is a chance for an informal chat and the opportunity to meet people who have similar experiences. Please contact the organiser for more information and to register for the event.
Wales area Zoom meeting report
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.
Wales area Zoom meeting report
9th May 2021
The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.
Colchester Zoom meeting report
2nd May 2021
We held our first gathering on Zoom on Sunday, 2nd May. This initial get together was an experiment for those of us who regularly attend our usual face to face meetings at Feering Community Centre, near Colchester.
Midlands area Zoom meeting report
19th April 2021
We had a super Zoom chat at 3pm on Sunday 19th April 2021. No new members this time, but we enjoyed lots of discussion around a wide range of topics.