Get together @ The Orange tree pub, Hitchin, SG4 9DR. Saturday April 30th @ 13.30pm This is the first face to face ‘Hitchin’ Get together since before the pandemic began. A chance to get together, have a chat & late lunch, with fellow HSP’rs. There are no speakers at this event. Please let me know if you can attend, so we …
Zoom meeting for families with HSP
We are holding a zoom meeting for families with HSP at 1.30pm on 18th May. If the younger members of your family have HSP we would love you to join us for an informal chat. For joining details, please contact the meeting organisers Penny and June.
Milford meeting (face-to-face)
We are looking forward to holding our Milford meeting on Saturday April 23rd from 3pm until 6pm.
Calling all people of Wales, Scotland and England…
Some of us will be online to Senedd, Holyrood and Westminster in a virtual reception (replacing the previous physical events). The British Rare Disease Strategy has already been produced and yet has to be ratified by the parliaments of Wales, Scotland and N Ireland.
Sheffield – Zoom meeting
Join us for a couple of hours to make friends and have a chat! Please contact the organiser for more information and to register for the event.
Wales and Bristol Area Zoom Meeting
This is a chance for an informal chat and the opportunity to meet people who have similar experiences. Please contact the organiser for more information and to register for the event.
Wales area Zoom meeting report
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.
Wales area Zoom meeting report
9th May 2021
The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.