Meeting (near Leeds/York)

Saturday 27th April (RSVP by Friday 19th April) at Lotherton Hall Off Collier Lane, Lotherton Ln, Aberford, Leeds LS25 3EB https://museumsandgalleries.leeds.gov.uk/lotherton/ Café | Zoo | Playgrounds | Deer Park and Grounds Saturday 27th April at 11.30 for refreshments at 12.00 at the Café on the estate The aim and purpose of the meeting: The format will be warm, welcoming, and …

Birmingham meeting

Kendrick Centre

We would like to invite you to the next get-together at The Kenrick Centre, Mill Farm Road, Harborne. B17 0QX on Saturday 13th April 12 noon – 3.30pm.

Birmingham post-Christmas lunch

Group Meeting

It was good to have 16 of us getting together for a pub lunch towards the end of January. Everyone said how lovely it was to meet up in person and to be able to share news, experiences and information.

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Milford afternoon tea

Hello everyone, At our April meeting, Tel Martin will be joining us. The title of his talk is ‘Planning for Your Future‘. As you will see from his descriptor below, he is covering many aspects of what should be considered as we get older. Could be there are some aspects that our younger members would benefit from considering? We’ll see …

Mobility Aids

Interested to hear about the different types of mobility aid someone with HSP might need?

Milford Afternoon Tea meeting report

19 November 2023
As our guest speaker for the meeting, we were very pleased to welcome Professor Sue Lanham-New, who is a Registered Public Health Nutritionist, from the University of Surrey.

Birmingham meeting report

Group Meeting

15 October 2023

A lovely sunny Sunday brought 14 of us together at The Kenrick Centre in Harborne for our autumn get-together at 12 noon, where we enjoyed a tasty buffet lunch with refreshments.

Upcoming Presentations

Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.

Scotland update July

We have not yet been able to fix a place for Face to Face meetings. We’ve been offered a room, but nobody to host the meeting, so have decided to run zooms which at least will include the Highlands and islands.

Presentations on Saturday

This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease