Birmingham meeting

Kendrick Centre

We would like to invite you to the next get-together at The Kenrick Centre, Mill Farm Road, Harborne. B17 0QX on Saturday 13th April 12 noon – 3.30pm.

Birmingham post-Christmas lunch

Group Meeting

It was good to have 16 of us getting together for a pub lunch towards the end of January. Everyone said how lovely it was to meet up in person and to be able to share news, experiences and information.

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Milford afternoon tea

Hello everyone, We hope 2024 is going well. Our next Milford Afternoon Tea is on Saturday April 6th from 3pm until 6pm. Being the Spring, we’ll start at 3pm with our carers, friends and family members having time together. Our speaker will be from 4pm and afternoon tea, to help you on your way home, from 5pm. Take care and …

Mobility Aids

Interested to hear about the different types of mobility aid someone with HSP might need?

Milford Afternoon Tea meeting report

19 November 2023
As our guest speaker for the meeting, we were very pleased to welcome Professor Sue Lanham-New, who is a Registered Public Health Nutritionist, from the University of Surrey.

Birmingham meeting report

Group Meeting

15 October 2023

A lovely sunny Sunday brought 14 of us together at The Kenrick Centre in Harborne for our autumn get-together at 12 noon, where we enjoyed a tasty buffet lunch with refreshments.

Upcoming Presentations

Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.

Scotland update July

We have not yet been able to fix a place for Face to Face meetings. We’ve been offered a room, but nobody to host the meeting, so have decided to run zooms which at least will include the Highlands and islands.

Presentations on Saturday

This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease

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AGM on Saturday

AGM Sat15th July via Zoom

The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease