Meeting (near Leeds/York)

Saturday 25th January (RSVP by Saturday 18th January) at Lotherton Hall Off Collier Lane, Lotherton Ln, Aberford, Leeds LS25 3EB https://museumsandgalleries.leeds.gov.uk/lotherton/ Café | Zoo | Playgrounds | Deer Park and Grounds Saturday 27th April at 11.30 for refreshments at 12.00 at the Café on the estate The aim and purpose of the meeting: The format will be warm, welcoming, and …

Milford April Afternoon Tea 2025

Our Spring Milford meeting is on Saturday April 5th from 3 pm until 6 pm. We’ll be meeting at The Clockhouse, Chapel Lane, Milford, Surrey GU8 5EZ. Of course, you’re welcome to join us during the afternoon and leave when you need to. Our meetings combine time to chat and socialise, plus having a speaker during the middle hour. Following …

Birmingham meeting

Kendrick Centre

We would like to invite you to the next get-together at The Kenrick Centre, Mill Farm Road, Harborne. B17 0QX on Saturday 12th April 12 noon – 3.30pm.

Feering, Colchester Meeting Report

Feering Community Centre

20th October 2024
We met, as usual, at Feering Community Centre on a Sunday afternoon. As we arrived, Superman and a Disney Princess also arrived to surprise the guests at a four year old’s birthday party in the larger hall! Sadly, they didn’t join us!

Birmingham meeting report

Kendrick Centre

12th October 2024
The Birmingham group had a lovely gathering on Saturday 12th October. 23 people came along, 15 of whom were people with the condition, 2 of whom were newcomers and one recently diagnosed.

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Presentation Details – 13th October

We are pleased to announce that we have three presentations arranged, as outlined at our AGM. These are all on Sunday 13th October, and will be via Zoom. These presentations will also be recorded and uploaded to our YouTube channel after. 11:00 – Harini Jeyakumar – Epidemiology of Hereditary Spastic Paraplegia in England and Northern Ireland using routine health records …

Milford Meeting Report

6th October 2024
We are always very pleased to welcome all those who make the journey to Milford, and a special thank you to those that offer to car share.

AGM Tomorrow

AGM 24th August 2024

The groups AGM is on 24th August at 10:30 BST.