European Reference Network for Rare Neurological Diseases (ERN-RND) webinar on improving care of rare diseases patients. 23rd Feb.
Midlands – Zoom meeting
Virtual meeting via Zoom, for those who would normally attend the Midlands HSP Support Group meetings. Please contact the organiser for more information and to register for the event.
Midlands Zoom Meeting – 31.1.2021
We shared a lovely Zoom with 12 UK members, one completely new to the Support Group, some from different regions, and several of our regular members too.
Coronavirus – Update on Meetings
Trustees decided at a recent meeting it was inappropriate to re-start face-to-face meetings until at least after the flu season.
Digital Meeting, 1st August
Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Sat 1st August at 11:00 (BST). All are welcome to attend!
AGM on YouTube
The recording of our successful digital AGM is the perfect launch for our YouTube channel.