9th May 2021
The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.
Colchester Zoom meeting report
2nd May 2021
We held our first gathering on Zoom on Sunday, 2nd May. This initial get together was an experiment for those of us who regularly attend our usual face to face meetings at Feering Community Centre, near Colchester.
On-line HSP meeting in Canada
There is a new HSP meeting being run in Canada on Sat 8th and Sun 9th of May. The meeting is being held on-line, and you may find something of interest. Registration for the meeting is CAD20 (~£11.65), and the meeting runs from 09:00-16:00 EST (16:00 – 21:00 BST). Funds raised are being used for HSP/PLS research The meeting is …
Midlands area Zoom meeting report
19th April 2021
We had a super Zoom chat at 3pm on Sunday 19th April 2021. No new members this time, but we enjoyed lots of discussion around a wide range of topics.
Milford Zoom meeting report
17th April 2021
We managed a Zoom meeting on the 17th April!!! Although booked in November 2020, the death of Prince Philip, determined our April meeting may not be possible, due to his funeral.
New HSP Research Award
There is a new award for HSP researchers, being funded by EuroHSP, the Adolf Strümpell Prize with a value of 2,500 Euro. It is a best paper award to recognise research achievements in therapy/treatment for HSP.
Potato Pants Mini-fest On-line
The Potato Pants mini-fest on Easter Sunday was a great success, and has now raised (with gift aid) just over £1000 for the group.
Potato Pants On-line Mini-fest!
A few of the potato pants musical regulars will be performing a live on-line set for the HSP Support Group on Easter Sunday between 16:00 and 18:30. Amie Knight, Matt Griffiths, Mikey Ball and Matt Black are extremely talented Dorset musicians who have donated their time to us. The event will be free of charge to watch, but we would …
Coronavirus Vaccine
HSP is a Neurological Condition. If you are in the UK, have HSP, and have not had your first Coronavirus vaccine, you can now book this yourself online or through 119. The UK has got to Group 6 – adults with underlying conditions which put them at higher risk of serious disease. The underlying condition list includes neurological conditions. 22 …