Today the trustees held their first on-line Zoom meeting. Having done a test with Zoom and Skype we decided that Zoom had better quality and it was easier to set up meetings in advance. The meeting worked really well, and because we didn’t have to travel to the same place it didn’t take all day or incur any expenses, but we did miss the opportunity to share a beer.
Coronavirus statement
There has been much uncertainty around the level of risk which people with HSP might have with coronavirus. Our Chair wrote a letter to members to explain our position both in respect of meetings and giving relevant extracts from the Government advice.
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A parent’s perspective of complicated HSP
At the 2018 AGM (my first), I had the chance to meet so many other parents who care for children with HSP, as well as adults who contend with the condition themselves.