New Video!

There is a new video on our YouTube channel – Dr Gita Ramdharry talks about physical activity and rehabilitation in HSP

Next Presentation

On Tuesday 11th Aug at 13:30 Gita Ramdharry will talk about rehabilitation and physical activity in HSP

New YouTube Video

The video of Dr Channa Hewamadduma’s presentation is now on our YouTube channel

Digital Meeting, 1st August

Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Sat 1st August at 11:00 (BST). All are welcome to attend!

AGM on YouTube

The recording of our successful digital AGM is the perfect launch for our YouTube channel.

Presentations coming up!

The three presentations advertised at the AGM are coming up, with the first one tomorrow – Saturday 25th July, at 09:30. We hope to be able to get these on YouTube afterwards. If you’re after details of how to access these, please drop us a line.

Zooming success

We had another really good Zoom test meeting at the weekend. We’re going to run one more test (on 27 June) and then we are ready for our AGM on 4 July!


Latest Newslink now live


The latest newslink magazine has been published. This article is our biggest one to date, including: A tribute to our former chair David Pearce and his generous bequest, our Chair’s column with further details on Coronavirus, new awards for the group, the newly formed committees, and a call for help.

New LinkedIn page


Great news! We are getting a presence on LinkedIn for the HSP Support Group. This is another avenue to make us more visible and to share news.