Birmingham Get-together

Kendrick Centre

April 13th 2024
A bright sunny day brought 25 lovely folks to the Birmingham get-together. We had 14 regulars.  3 couldn’t make it due to illness, and 11 newcomers!! – 6 of whom have HSP.  

Milford April Meeting

6th April 2024
Following the Carer’s time together, we were pleased to welcome Tel Martin from AGEUK as guest speaker. Tel’s topic was ‘Planning for The Future’, which is being pioneered in Surrey.

Birmingham post-Christmas lunch

Group Meeting

It was good to have 16 of us getting together for a pub lunch towards the end of January. Everyone said how lovely it was to meet up in person and to be able to share news, experiences and information.

Viking Marathon

In October Tom Bell raised money for us by running a marathon in full Viking gear. You can listen to him talking to BBC Radio about this: https://www.bbc.co.uk/sounds/play/p0ggjnq8 If you’d like to donate to this, use this Just Giving link: https://www.justgiving.com/page/tomvikingmarathon

Mobility Aids

Interested to hear about the different types of mobility aid someone with HSP might need?

Compassion Therapy

There is a new video on our YouTube channel – how compassion therapy might help people with HSP.

How to donate!

News

Details of how you can dontate to support us.

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Feb 24: Everest Base Camp Trek

Jason Main and Gavin will be trekking to Everest Base Camp in February 2024. You can sponsor Jason and Gavin here: https://www.justgiving.com/page/jasonmain Jason says: I will be supporting a cause very close to my family, Hereditary Spastic Paraplegia (HSP) Support Group. In short HSP is a diagnosis that covers a range of rare genetic disorders caused by one or more gene …

Jan 24: Arctic Dog Sledding

Emma is fundraising for the group by completing 200km dog sledding in Sweden in January 2024. You can sponsor her here: https://www.justgiving.com/fundraising/emmasarcticadventure Emma says: My son has HSP and it’s a really difficult condition as it’s degenerative so the challenges get harder and harder. More research needs to be done about HSP and patient care needs and support from health …