25 October 2025
The first Scottish face to face meeting was held in Williamwood High School on the south side of Glasgow on Saturday 25 October. Some of us had met previously on zoom meetings but this was the first time we had actually physically met each other.
18 October 2025
The Birmingham meeting was held on Saturday 18th October. It was arranged to be just a chatty get-together but we had a call from Doctor Jacob Day – who is a neurology doctor currently half way through a PHD at Exeter university, researching HSP with Andrew Crosby and his team.
12 October 2025
We met at Feering Community Centre in Essex for our Autumn gathering on 12th October this year. We were joined by three new people and chatted over tea, coffee and biscuits.
The latest edition of our newsletter, NewsLink is now available. https://hspgroup.org/wp-content/uploads/2025/10/HSP-Newslink-issue-58-%E2%80%93-final.pdf Have a read to hear about the latest activities in our world. You can find out more about upcoming HSP books, key links to useful places, world HSP day on October 17th, upcoming meetings, and reports about meetings, participating in research projects, and a couple of members stories.
On Friday October 17th, Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS) communities around the world are uniting to raise awareness about these rare diseases. This year, 17 associations and 3 foundations from 15 countries are participating in a global campaign. If you are interested in why this date has been chosen, read on EuroHSP: https://www.eurohsp.eu/events How Can I …
4th September 2025
To celebrate ten years of the Medway Neurological Network, the group organised the Medway Neuro-Tech 25 at the Universities at Medway, Chatham.
AGM Recordings The recording of our 2025 AGM has now been uploaded to our YouTube channel. You can view this directly on this link: https://www.youtube.com/watch?v=Po9WgBxyOPc We have also added a set of links to all our recorded AGMs on our AGM page, so if you wished to review the AGMs for any year since 2020, you can do so here: …
We held our AGM today in Birmingham. It was great to see many of our members there in person. We had some great discussions about lots of different topics, both about what was being said and also in the times between the different aspects. We elected our trustees, accepted our reports and gave an update on what has been going …
We’re into the last couple of days of voting for our AGM. We would be delighted for more of our members to give us confirmation of our approach. We also still have some capacity for more at our face-to-face AGM in Selly Oak, Birmingham on Sunday 27th July. Members, please let us know if you wish to attend. Further details …
Our AGM is approaching fast. We have one week left of voting. It is important for us to hear how our members feel about what we do. Members have a week left to:* Vote in our AGM.* Let us know they are coming to our AGM in Birmingham. Details for these digital tasks are in an e-mail we sent at …
