AGM Tomorrow

AGM Welcome

It is our 2022 AGM tomorrow morning, via Zoom. Looking forward to sharing our activities form the last year with our members!

AGM 2022 Voting underway

News

Our AGM is coming up on 16th July via Zoom to make it accessible to people who cannot travel. We’ve electronic voting in advance again this year. Members should check their e-mails for a link to vote. Please have your say in how we are run!

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AGM 2022

News

The Group AGM will be via Zoom on Sat 16th July 2022

The Potato Pants Festival is back!

The 2022 Potato Pants festival is taking place on September 3rd at Cobham Sports and Social club on the outskirts of Wimborne.  It’s a family friendly festival with activities and facilities to entertain the children.  

Zoom for Families with Children & Young People Report

18th May 2022
A lovely group zoom with seven people and everyone happy to introduce themselves. One person had very recently developed hearing difficulties and decided to leave. He said that he’d be very happy to be included in the next meeting.

Home affairs

Welsh Parliament

On the run up to an announcement on the Wales Rare Disease Action Plan, journalist and HSP Support Group member, Phil Parry, discusses the issues faced by those with HSP in an article for The Eye.

Colchester Branch Meeting Report

Group Meeting

10th April 2022
We met at Feering Community Centre, near Colchester in Essex on Sunday, 10th April for our first face-to-face meeting since October 2019.  It was so good to meet in person again.

Research request – Pregnant women

The MuM-PreDiCT research group is trying to improve care for pregnant women who have multiple long-term health conditions through research. They need help to prioritise outcomes that should be reported in all studies of pregnant women with multiple long-term conditions. The group would like to hear from you if both of these factors apply to you: You have been pregnant in …