The 2022 Potato Pants festival is taking place on September 3rd at Cobham Sports and Social club on the outskirts of Wimborne. It’s a family friendly festival with activities and facilities to entertain the children.
18th May 2022
A lovely group zoom with seven people and everyone happy to introduce themselves. One person had very recently developed hearing difficulties and decided to leave. He said that he’d be very happy to be included in the next meeting.
23rd April 2022
During the afternoon, I heard these words many times. Why? So good to see each other again. So good to be able to chat and share again. So good not to be the only one with a funny walk. This last comment was surprising, but confirms the benefits of meeting with others with the same disability.
9th April 2022
We would have loved to have had a face-to-face meeting here in Birmingham in April but the meetings are held in a Day Centre Facility and Covid restrictions still haven’t allowed us to return there as yet. We are hopeful for October.
Some of us will be online to Senedd, Holyrood and Westminster in a virtual reception (replacing the previous physical events). The British Rare Disease Strategy has already been produced and yet has to be ratified by the parliaments of Wales, Scotland and N Ireland.
26th January 2022
We have a separate meeting for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.