19th April 2026
We met at Feering, near Colchester in Essex on 19th April 2026 for our Spring meeting.
Colchester Branch Meeting Report
Birmingham meeting report
18th April 2026
A group of around 30 got together at the Kenrick Centre in Birmingham to chat, share and build relationships over lunch. There were new faces and old and everyone all came together and united around our shared experiences of life with HSP.
Milford Afternoon Tea report
11 April 2026
Such an afternoon! The day started dull, with the afternoon bringing sunshine and brightness, which very much reflected the Milford meeting. Sadly, circumstance such as ill-health, no dog sitter and enjoying holidays prevented people joining us.
Service of Thanksgiving for Volunteers – Rochester Cathedral
With many thanks to Phil Bungay from Medway Neurological Network, we were invited to join The Lord-Lieutenant of Kent and The High Sheriff of Kent Service of Thanksgiving for Volunteers on 12th March 2026.
John Mason
I was devastated to hear of the passing of my great friend John Mason at the end of last year. Just in case any members aren’t aware of this sad news, I thought I’d put a few words on here. As many of you will know, John was a former treasurer of the HSP Group, a role that he held for several years. We were so lucky to have found such a thorough treasurer and with some great assistance from his wife Sonya, kept our accounts up to date with great precision.
SPG 11 and SPG 15 Families Zoom Meeting Report
14 January 2026
We have a separate meeting occasionally for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
Milford Afternoon Tea meeting report
2nd November 2025
Holding meetings in the Autumn comes with the added difficulty of early dark evenings and changeable weather.
Report from HSP Meeting Scotland
25 October 2025
The first Scottish face to face meeting was held in Williamwood High School on the south side of Glasgow on Saturday 25 October.
Hitchin report
25 October 2025
7 of us meet at the Orange Tree pub just outside Hitchin. A few more hoped to come but were prevented from attending at the last minute while several others had prior commitments but hope to be able to come in future.
Birmingham October Meeting Report
18 October 2025
The Birmingham meeting was held on Saturday 18th October. It was arranged to be just a chatty get-together but we had a call from Doctor Jacob Day – who is a neurology doctor currently half way through a PHD at Exeter university, researching HSP with Andrew Crosby and his team.