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Family chat zoom meeting report

Thursday 18th November 2021

The meetings committee have been wanting to get parents & carers of children, young people & dependant adults with hsp together for a long time.

East Anglia Zoom Meeting Report

11 November 2021
Although face to face meetings are held in Norwich and at Feering, near Colchester, in non-covid times, this zoom gathering was expanded to include the whole of East Anglia.

SPG 11 and SPG 15 Zoom Meeting Report

4 November 2021

You may wonder why we would have a separate meeting for these two types of HSP.  It’s because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia. 

Scotland Zoom Meeting Report

31st October 2021

This was the third Zoom meeting we have held and we were pleased to see some new faces of all ages, some who watched and some who stayed for part.

2

Birmingham Zoom Chat Report

Saturday 16th October 2021 – 2pm

Everyone welcomed. Only four people attended this time. We welcomed our newcomer and had lots to talk about including Botox, walking aids, FES and families with HSP.

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Wales / Bristol area zoom meeting report

10th October 2021

The meeting started at five pm (as advertised) but I was quite disappointed that only one member showed up, even though the meeting was well advertised and John Mason sent out 42 invitations.

Wales area Zoom meeting report

20th June 2021

The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.

Wales area Zoom meeting report

9th May 2021

The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.

Colchester Zoom meeting report

2nd May 2021

We held our first gathering on Zoom on Sunday, 2nd May. This initial get together was an experiment for those of us who regularly attend our usual face to face meetings at Feering Community Centre, near Colchester.

Midlands area Zoom meeting report

19th April 2021

We had a super Zoom chat at 3pm on Sunday 19th April 2021. No new members this time, but we enjoyed lots of discussion around a wide range of topics.