11 November 2021
Although face to face meetings are held in Norwich and at Feering, near Colchester, in non-covid times, this zoom gathering was expanded to include the whole of East Anglia.
SPG 11 and SPG 15 Zoom Meeting Report
4 November 2021
You may wonder why we would have a separate meeting for these two types of HSP. It’s because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.Â
Scotland Zoom Meeting Report
31st October 2021
This was the third Zoom meeting we have held and we were pleased to see some new faces of all ages, some who watched and some who stayed for part.
Birmingham Zoom Chat Report
Saturday 16th October 2021 – 2pm
Everyone welcomed. Only four people attended this time. We welcomed our newcomer and had lots to talk about including Botox, walking aids, FES and families with HSP.
Wales / Bristol area zoom meeting report
10th October 2021
The meeting started at five pm (as advertised) but I was quite disappointed that only one member showed up, even though the meeting was well advertised and John Mason sent out 42 invitations.
Wales area Zoom meeting report
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.
Wales area Zoom meeting report
9th May 2021
The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.
Colchester Zoom meeting report
2nd May 2021
We held our first gathering on Zoom on Sunday, 2nd May. This initial get together was an experiment for those of us who regularly attend our usual face to face meetings at Feering Community Centre, near Colchester.
Midlands area Zoom meeting report
19th April 2021
We had a super Zoom chat at 3pm on Sunday 19th April 2021. No new members this time, but we enjoyed lots of discussion around a wide range of topics.
Milford Zoom meeting report
17th April 2021
We managed a Zoom meeting on the 17th April!!! Although booked in November 2020, the death of Prince Philip, determined our April meeting may not be possible, due to his funeral.