20th October 2024
We met, as usual, at Feering Community Centre on a Sunday afternoon. As we arrived, Superman and a Disney Princess also arrived to surprise the guests at a four year old’s birthday party in the larger hall! Sadly, they didn’t join us!
Birmingham meeting report
12th October 2024
The Birmingham group had a lovely gathering on Saturday 12th October. 23 people came along, 15 of whom were people with the condition, 2 of whom were newcomers and one recently diagnosed.
Presentation Details – 13th October
We are pleased to announce that we have three presentations arranged, as outlined at our AGM. These are all on Sunday 13th October, and will be via Zoom. These presentations will also be recorded and uploaded to our YouTube channel after. 11:00 – Harini Jeyakumar – Epidemiology of Hereditary Spastic Paraplegia in England and Northern Ireland using routine health records …
Milford Meeting Report
6th October 2024
We are always very pleased to welcome all those who make the journey to Milford, and a special thank you to those that offer to car share.
Annual General Meeting (AGM)
The group’s Annual General Meeting (AGM) will be on Saturday 24th August via Zoom
Birmingham October meeting
We would like to invite you to the next get-together at The Kenrick Centre, Mill Farm Road, Harborne. B17 0QX on Saturday 12th October, noon – 3.30pm.
Milford afternoon tea
Hello everyone, How times flies! Our next Milford meeting is on Sunday October 6th. We have moved the gathering to October, in the hope our journey’s home won’t be in the dark. We’ll be at The Clockhouse, Chapel Lane, Milford, Surrey GU8 5EZ, starting at 2 pm and finishing at 5pm. Of course, you’re welcome to join us during the …