19 November 2023
As our guest speaker for the meeting, we were very pleased to welcome Professor Sue Lanham-New, who is a Registered Public Health Nutritionist, from the University of Surrey.
Milford Afternoon Tea meeting report
Birmingham meeting report
15 October 2023
A lovely sunny Sunday brought 14 of us together at The Kenrick Centre in Harborne for our autumn get-together at 12 noon, where we enjoyed a tasty buffet lunch with refreshments.
Upcoming Presentations
Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.
Scotland update July
We have not yet been able to fix a place for Face to Face meetings. We’ve been offered a room, but nobody to host the meeting, so have decided to run zooms which at least will include the Highlands and islands.
Presentations on Saturday
This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease
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AGM on Saturday
The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease
Burnley Meeting Report
24 June 2023
We met at Mount Zion Church, in Cliviger, Burnley, and my friend helped with drinks and snacks.
One couple came, which allowed the opportunity for a more in-depth discussion. We talked about physiotherapy and plans for the future.
Scotland update
We have been a bit quiet on the Scotland front so I thought I should update you. There have been a few Zooms over the past months and the plan was to wait until the planned meeting of the Scottish CPG at the Holyrood parliament on 15th March.
Birmingham meeting
Save the date! We would like to invite you to the next get-together on Sunday 15th October, 12pm-3pm, at the The Kenrick Centre, Mill Farm Road, Harborne, Birmingham B17 0QX. We are looking forward to seeing everyone. Best Wishes June and Penny