5 April 2025
With such glorious weather we were delighted to welcome twenty people to our meeting, including some new faces.
Milford Afternoon Tea
Colchester Branch Meeting Report
23 March 2025
We met at Feering, near Colchester in Essex on 23rd March 2025 for our Spring meeting. There were 16 of us from across the region, chatting over tea, coffee and biscuits and listening to our speaker, Bob Barnett, who came from REMAP Essex North to talk about the work REMAP volunteers do for people with disabilities.
Medway Neurological Network – Rare Disease Day
21st February 2025
The Medway Neurological Network organised a get together for Rare Disease Day, Friday 28th February, a week early on Friday 21st February.
Birmingham meeting report
1 February 2025
After a very cold, stormy, wet January, it was so nice for the Birmingham Group to meet up for a pub lunch at The Red Lion at Earlswood.
Feering, Colchester Meeting Report
20th October 2024
We met, as usual, at Feering Community Centre on a Sunday afternoon. As we arrived, Superman and a Disney Princess also arrived to surprise the guests at a four year old’s birthday party in the larger hall! Sadly, they didn’t join us!
Birmingham meeting report
12th October 2024
The Birmingham group had a lovely gathering on Saturday 12th October. 23 people came along, 15 of whom were people with the condition, 2 of whom were newcomers and one recently diagnosed.
Milford Meeting Report
6th October 2024
We are always very pleased to welcome all those who make the journey to Milford, and a special thank you to those that offer to car share.
Birmingham Get-together
April 13th 2024
A bright sunny day brought 25 lovely folks to the Birmingham get-together. We had 14 regulars. 3 couldn’t make it due to illness, and 11 newcomers!! – 6 of whom have HSP.
Milford April Meeting
6th April 2024
Following the Carer’s time together, we were pleased to welcome Tel Martin from AGEUK as guest speaker. Tel’s topic was ‘Planning for The Future’, which is being pioneered in Surrey.
Birmingham post-Christmas lunch
It was good to have 16 of us getting together for a pub lunch towards the end of January. Everyone said how lovely it was to meet up in person and to be able to share news, experiences and information.