The Group AGM will be via Zoom on Sat 16th July 2022
The Potato Pants Festival is back!
The 2022 Potato Pants festival is taking place on September 3rd at Cobham Sports and Social club on the outskirts of Wimborne. It’s a family friendly festival with activities and facilities to entertain the children.
Zoom for Families with Children & Young People Report
18th May 2022
A lovely group zoom with seven people and everyone happy to introduce themselves. One person had very recently developed hearing difficulties and decided to leave. He said that he’d be very happy to be included in the next meeting.
Home affairs
On the run up to an announcement on the Wales Rare Disease Action Plan, journalist and HSP Support Group member, Phil Parry, discusses the issues faced by those with HSP in an article for The Eye.
Colchester Branch Meeting Report
10th April 2022
We met at Feering Community Centre, near Colchester in Essex on Sunday, 10th April for our first face-to-face meeting since October 2019. It was so good to meet in person again.
Research request – Pregnant women
The MuM-PreDiCT research group is trying to improve care for pregnant women who have multiple long-term health conditions through research. They need help to prioritise outcomes that should be reported in all studies of pregnant women with multiple long-term conditions. The group would like to hear from you if both of these factors apply to you: You have been pregnant in …
Hitchin get together report
30th April 2022
The Hitchin Get together was held on the 30th April 2022 @ 13.30 @ the Orange Tree pub. It was the first face to face meet up since the pandemic began in 2020.
Milford meeting report – So good!
23rd April 2022
During the afternoon, I heard these words many times. Why? So good to see each other again. So good to be able to chat and share again. So good not to be the only one with a funny walk. This last comment was surprising, but confirms the benefits of meeting with others with the same disability.
Birmingham meeting report
9th April 2022
We would have loved to have had a face-to-face meeting here in Birmingham in April but the meetings are held in a Day Centre Facility and Covid restrictions still haven’t allowed us to return there as yet. We are hopeful for October.
