New Q&A Video

Q&A session highlights from Dr Channa Hewamaddumas talk at the AGM in August 2020

New Q&A Video

New video on our Youtube channel with selected highlights of the Q&A session following Prof Andrew Crosby & Dr Emma Baple talk recorded on 25th July 2020

Vaccination scams

There has been a worrying rise in the amount of scams doing the rounds – especially in relation to the coronavirus vaccine. Not only are there many about, but they also look very genuine. This post by Mike Cain explores how to recognise the real thing. The vaccination is free via the NHS. Most appointments will be made via your …

Midlands Zoom meeting report

31st January 2021

We shared a lovely Zoom with 12 UK members, one completely new to the Support Group, some from different regions, and several of our regular members too.

AGM Highlights Video

There is a new video on our YouTube channel – a 6 minute highlight video of our AGM. Viewers can understand what we do and how we work. Enjoy!

Happy New Year

Wishing all our members, followers and anyone with an interest in #HereditarySpasticParaplegia a Happy New Year

Happy Christmas


Happy Christmas to our members, our followers, and anyone with an interest in the worldwide #HereditarySpasticParaplegia community! We held a lovely Zoom call yesterday, reaching out to any of our members who was by themselves, or feeling a bit down.

European HSP Surveys


2 European research projects keen to hear from anyone with HSP.

Latest Newslink

Our latest NewsLink is available to read