Q&A session highlights from Dr Channa Hewamaddumas talk at the AGM in August 2020
Webinar: Improving care of rare disease patients in Europe
European Reference Network for Rare Neurological Diseases (ERN-RND) webinar on improving care of rare diseases patients. 23rd Feb.
New Q&A Video
New video on our Youtube channel with selected highlights of the Q&A session following Prof Andrew Crosby & Dr Emma Baple talk recorded on 25th July 2020
Vaccination scams
There has been a worrying rise in the amount of scams doing the rounds – especially in relation to the coronavirus vaccine. Not only are there many about, but they also look very genuine. This post by Mike Cain explores how to recognise the real thing. The vaccination is free via the NHS. Most appointments will be made via your …
AGM Highlights Video
There is a new video on our YouTube channel – a 6 minute highlight video of our AGM. Viewers can understand what we do and how we work. Enjoy!
Happy New Year
Wishing all our members, followers and anyone with an interest in #HereditarySpasticParaplegia a Happy New Year
Happy Christmas
Happy Christmas to our members, our followers, and anyone with an interest in the worldwide #HereditarySpasticParaplegia community! We held a lovely Zoom call yesterday, reaching out to any of our members who was by themselves, or feeling a bit down.
Declutter & Fundraise!
Declutter your house of books, games, CDs and DVDs and raise money for the group