The Group AGM will be via Zoom on Sat 16th July 2022
The Potato Pants Festival is back!
The 2022 Potato Pants festival is taking place on September 3rd at Cobham Sports and Social club on the outskirts of Wimborne. It’s a family friendly festival with activities and facilities to entertain the children.
Home affairs
On the run up to an announcement on the Wales Rare Disease Action Plan, journalist and HSP Support Group member, Phil Parry, discusses the issues faced by those with HSP in an article for The Eye.
Research request – Pregnant women
The MuM-PreDiCT research group is trying to improve care for pregnant women who have multiple long-term health conditions through research. They need help to prioritise outcomes that should be reported in all studies of pregnant women with multiple long-term conditions. The group would like to hear from you if both of these factors apply to you: You have been pregnant in …
Calling all people of Wales, Scotland and England…
Some of us will be online to Senedd, Holyrood and Westminster in a virtual reception (replacing the previous physical events). The British Rare Disease Strategy has already been produced and yet has to be ratified by the parliaments of Wales, Scotland and N Ireland.
YouTube: Falls with HSP
The second of our AGM presentations, Falling with HSP, presented by Coralie Seary is also available on our YouTube Channel.
YouTube – Mindfulness
Ray Owen talked to the group on 28th August about Mindfulness, Acceptance and Values. The recording of this is now on our Youtube Channel.
New YouTube video
It is another busy weekend for the group. The video from Henry Houlden’s talk on 17July is now on our YouTube channel https://www.youtube.com/watch?v=HtgQO-_vNBQ The next presentation is in an hour-or-so’s time – everyone is welcome. Also, the #HSP1000 challenge continues to run really well! – thank you to everyone!