Milford Zoom Meeting Report

21st November 2021
Catching up with those who usually join us at Milford was a pleasure, plus welcoming a new couple.


Family chat zoom meeting report

Thursday 18th November 2021

The meetings committee have been wanting to get parents & carers of children, young people & dependant adults with hsp together for a long time.

East Anglia Zoom Meeting Report

11 November 2021
Although face to face meetings are held in Norwich and at Feering, near Colchester, in non-covid times, this zoom gathering was expanded to include the whole of East Anglia.

SPG 11 and SPG 15 Zoom Meeting

This will be an opportunity to get together with others who have SPG 11 or SPG 15 or who support someone with one of these types of HSP. You can read a write up of our last meeting here. If you have any questions or to receive the joining link for the meeting, contact me by email. I look forward …

SPG 11 and SPG 15 Zoom Meeting Report

4 November 2021

You may wonder why we would have a separate meeting for these two types of HSP.  It’s because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia. 


East Anglia Zoom Meeting

This will be a relaxed opportunity to catch up and perhaps make some new friends and is open to members and non members of he HSP Support Group. Join us any time between between 7 and 9 pm. Please contact the organiser, Hilary, for the joining details.

Zoom Meeting for SPG 11 and SPG 15 Families

As we SPG 11 and SPG 15 families are scattered across the country it’s difficult for us to meet face to face. So, we thought it would be good to meet on zoom. It will give us an opportunity to get to know other families in the UK and to share experiences and advice. There is no need to be …


Birmingham Zoom Chat Report

Saturday 16th October 2021 – 2pm

Everyone welcomed. Only four people attended this time. We welcomed our newcomer and had lots to talk about including Botox, walking aids, FES and families with HSP.

Sheffield – Zoom meeting

Sheffield meeting poster

Join us for a couple of hours to make friends and have a chat! Please contact the organiser for more information and to register for the event.


Wales / Bristol area zoom meeting report

10th October 2021

The meeting started at five pm (as advertised) but I was quite disappointed that only one member showed up, even though the meeting was well advertised and John Mason sent out 42 invitations.