4 November 2021
You may wonder why we would have a separate meeting for these two types of HSP. It’s because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
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East Anglia Zoom Meeting
This will be a relaxed opportunity to catch up and perhaps make some new friends and is open to members and non members of he HSP Support Group. Join us any time between between 7 and 9 pm. Please contact the organiser, Hilary, for the joining details.
Zoom Meeting for SPG 11 and SPG 15 Families
As we SPG 11 and SPG 15 families are scattered across the country it’s difficult for us to meet face to face. So, we thought it would be good to meet on zoom. It will give us an opportunity to get to know other families in the UK and to share experiences and advice. There is no need to be …
Birmingham Zoom Chat Report
Saturday 16th October 2021 – 2pm
Everyone welcomed. Only four people attended this time. We welcomed our newcomer and had lots to talk about including Botox, walking aids, FES and families with HSP.
Sheffield – Zoom meeting
Join us for a couple of hours to make friends and have a chat! Please contact the organiser for more information and to register for the event.
Wales / Bristol area zoom meeting report
10th October 2021
The meeting started at five pm (as advertised) but I was quite disappointed that only one member showed up, even though the meeting was well advertised and John Mason sent out 42 invitations.
Wales and Bristol Area Zoom Meeting
This is a chance for an informal chat and the opportunity to meet people who have similar experiences. Please contact the organiser for more information and to register for the event.
Wales area Zoom meeting report
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.
Zoom chat – Loneliness Awareness Week
This week is Loneliness Awareness Week and so we’re holding a very informal chat session on zoom for any HSPers or their families in the UK who may be feeling lonely or a bit low at the moment and would like to get together with others. It is on Thursday, 17th June from 4 – 5 pm. This is in …
Wales – Zoom meeting
Wales
Virtual meeting via Zoom, for those who would normally attend the Wales HSP Support Group meetings.