Monthly zoom meeting for all members with Estelle

This session is one of our regular, informal, Zoom meetings held on the third Tuesday of each month. The meeting is open to all those coping with HSP and you are very welcome to come. Zoom link here.

AGM presentations on YouTube

All our 2024 AGM presentations are now on our YouTube channel -why not pop over and watch?https://www.youtube.com/@ukhsp-spasticparaplegia #HSP #HereditarySpasticParaplegia #RareDisease Harini Jeyakumar presented her study into the Epidemiology of HSP in England and Northern Ireland, focussing on mental health outcomes. She completed for her dissertation in her Masters of Public Health degree. – https://www.youtube.com/watch?v=ARMtXWg0EOE Estelle Marshall presented her study of …

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Presentation Details – 13th October

We are pleased to announce that we have three presentations arranged, as outlined at our AGM. These are all on Sunday 13th October, and will be via Zoom. These presentations will also be recorded and uploaded to our YouTube channel after. 11:00 – Harini Jeyakumar – Epidemiology of Hereditary Spastic Paraplegia in England and Northern Ireland using routine health records …

AGM Tomorrow

AGM 24th August 2024

The groups AGM is on 24th August at 10:30 BST.

scientific Zoom on the SPG4 Project

Save the date! Dr Cinzia Rinaldo will be holding a scientific Zoom session for lay people interested in the SPG4 Project, which the HSP Group is supporting. It is 31 July at 6.30pm UK time (7.30 European Central Summer Time). More details to follow.

Zoom for Scotland

In order to replace physical meetings in Stockport, Malton, Newcastle, and Scotland whilst we find alternatives, there will be a series of regional zooms initially on a Sunday afternoon but will be on different days/times depending on feedback. The regions will be North West England, North East England/ North Yorkshire and Scotland. The aim is to listen to people with …

Zoom North East

In order to replace physical meetings in Stockport, Malton, Newcastle, and Scotland whilst we find alternatives, there will be a series of regional zooms initially on a Sunday afternoon but will be on different days/times depending on feedback. The regions will be North West England, North East England/ North Yorkshire and Scotland. The aim is to listen to people with …

Zoom North West

In order to replace physical meetings in Stockport, Malton, Newcastle, and Scotland whilst we find alternatives, there will be a series of regional zooms initially on a Sunday afternoon but will be on different days/times depending on feedback. The regions will be North West England, North East England/ North Yorkshire and Scotland. The aim is to listen to people with …