Presentations on Saturday

This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease

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AGM on Saturday

AGM Sat15th July via Zoom

The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease

AGM – 15th July

News: Our 2023 AGM will be on Saturday 15th July, at 10:30.This will be through Zoom to allow as many members to attend.#HSP #RareDisease #HereditarySpasticParaplegia

Zoom Scotland Report

Scottish Island

21 May 2023
We had an interesting discussion about how the fund that is supposed to exist for Scots to travel to centres in England can be accessed. It seems one exits to allow those on the islands to travel within Scotland for treatment.

Scotland update

We have been a bit quiet on the Scotland front so I thought I should update you. There have been a few Zooms over the past months and the plan was to wait until the planned meeting of the Scottish CPG at the Holyrood parliament on 15th March.

Scottish Zoom meeting

There will be a Zoom for the people of Scotland on Sunday 21st May, from 3pm-5pm. Remember you can drop in and out of this meeting. Please contact the meeting organiser, Mike for more details. We have a Whats App group if you want to join, please also contact Mike for details.

Scotland Zoom Meeting Report

22nd October 2022
The meeting went ahead despite the muddle of Meta Rejigging of Facebook, and several zoomed including some new. We spent a lot of time talking about rollators, bikes and other rural mobility aids that could cope with tough surfaces as well as what adjustments Motorbility might make.

Scottish Zoom meeting

There will be a Zoom for the people of Scotland on a provisional date of 22nd October 2022. While this meeting will be via Zoom, in future we will try and fix a location in Scotland suitable for most, for a physical get-together. Currently we have an offer for physical meetings near Glasgow. We did plan a physical meeting in …

Stockport Zoom Meeting

Stockport

It was expected to have as a F2F meeting as before, but we couldn’t find anyone able to help set up and take down. So we are having a Zoom. It will be a general chat, but people are invited to raise particular points either at the Zoom, or if they want to email me, I can do a bit …