On Weds 10th August at 7pm Janet McBride will give us an overview of disability and other related benefits via Zoom. There should be time for some questions and answers afterwards. If you wish to attend please ask for details of the Zoom link.
AGM 2022 Voting underway
Our AGM is coming up on 16th July via Zoom to make it accessible to people who cannot travel. We’ve electronic voting in advance again this year. Members should check their e-mails for a link to vote. Please have your say in how we are run!
AGM 2022
The group has reflected on the digital AGMs held during Coronavirus restrictions. Whilst many people who attend enjoy socialising, the key benefit of digital AGMs is that it opens up the AGM to all members with an internet connection. This makes the AGM accessible to a larger proportion of membership compared with those able to travel to a physical meeting …
YouTube: Falls with HSP
The second of our AGM presentations, Falling with HSP, presented by Coralie Seary is also available on our YouTube Channel.
YouTube – Mindfulness
Ray Owen talked to the group on 28th August about Mindfulness, Acceptance and Values. The recording of this is now on our Youtube Channel.
2021 AGM on YouTube
Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease