Our AGM is now on YouTube. Please watch for an important update.
AGM – Last Day of Voting
Today is the last day of voting for our AGM on Saturday 24th August. Members should let us know their thoughts.
Annual General Meeting (AGM)
The group’s Annual General Meeting (AGM) will be on Saturday 24th August via Zoom
Mobility Aids
Interested to hear about the different types of mobility aid someone with HSP might need?
Compassion Therapy
There is a new video on our YouTube channel – how compassion therapy might help people with HSP.
Upcoming Presentations
Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.
Presentations on Saturday
This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease
AGM on Saturday
The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease