Mobility Aids

Interested to hear about the different types of mobility aid someone with HSP might need?

Compassion Therapy

There is a new video on our YouTube channel – how compassion therapy might help people with HSP.

Upcoming Presentations

Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.

Presentations on Saturday

This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease


AGM on Saturday

AGM Sat15th July via Zoom

The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease

AGM – 15th July

News: Our 2023 AGM will be on Saturday 15th July, at 10:30.This will be through Zoom to allow as many members to attend.#HSP #RareDisease #HereditarySpasticParaplegia

The molecular basis of HSP

New video on our YouTube channel – Andrew Crosby and Emma Baple tell the group about the work their team has been doing in Exeter, including new types of HSP, partly funded by the group. This video was recorded on Weds 24th August 2022. #HSP #RareDisease #HereditarySpasticParaplegia

AGM Presentation – Olivia Rickmans work at Exeter (by Zoom)

AGM Presentation via Zoom

On Weds 24th August at 7pm Andrew Crosby and Emma Baple will give us an overview of the work that Olivia Rickman did for her PhD via Zoom. We funded part of Olivia’s PhD at Exeter between 2016 and 2019. There should be time for some questions and answers afterwards. If you wish to attend please ask for details of …