The presentations made at our AGM’s in 2025 and 2026 are now also available on our YouTube channel. You can watch these recordings: Flying scholarships for disabled people and London marathon. Ian Bennett. https://youtu.be/cPDviIOsksU Exercising with HSP. Estelle Marshall. https://youtu.be/NMIneNtzb0o Physical Activity in HSP. Renae Stefanetti. https://youtu.be/ZvOcF_gBf0s Overview of HSP, Clinical features, Management and Clinical research. Yi Ng. https://youtu.be/gcmiLkwvRW4 Re-thinking …
2026 AGM on YouTube
The recording of the 2026 AGM, held on Sunday 26th July, is now on our YouTube channel. Video highlights include: Note – at the actual AGM, we ran the AGM before lunch and the awards after lunch. The video includes both the AGM and the awards.
AGM Voting Reminder
We’re into our last week of voting for our AGM, which will be on Sunday 26th July. Will members please check their e-mails and spend a brief minute voting and electing trustees. There is more information on our AGM page: https://hspgroup.org/annual-general-meeting/
Upcoming AGM – 26 July
We’re getting the final preparations ready for our AGM in 3 weeks time, on Sunday 26th July 2026 at 10:30. Members have received a letter giving the details and links for voting, and we ask for action on two fronts: Our AGM will be at: Sense TouchBase Pears, 750 Bristol Road, Selly Oak, Birmingham, B29 6NA. Where it is feasible …
YouTube Update
AGM Recordings The recording of our 2025 AGM has now been uploaded to our YouTube channel. You can view this directly on this link: https://www.youtube.com/watch?v=Po9WgBxyOPc We have also added a set of links to all our recorded AGMs on our AGM page, so if you wished to review the AGMs for any year since 2020, you can do so here: …
Brilliant AGM
We held our AGM today in Birmingham. It was great to see many of our members there in person. We had some great discussions about lots of different topics, both about what was being said and also in the times between the different aspects. We elected our trustees, accepted our reports and gave an update on what has been going …
2025 AGM – Voting ends soon
We’re into the last couple of days of voting for our AGM. We would be delighted for more of our members to give us confirmation of our approach. We also still have some capacity for more at our face-to-face AGM in Selly Oak, Birmingham on Sunday 27th July. Members, please let us know if you wish to attend. Further details …
AGM – Last week of voting
Our AGM is approaching fast. We have one week left of voting. It is important for us to hear how our members feel about what we do. Members have a week left to:* Vote in our AGM.* Let us know they are coming to our AGM in Birmingham. Details for these digital tasks are in an e-mail we sent at …
2025 AGM Notification
This post is a copy of most the letter sent from our Chair to members at the end of June about our 2025 AGM, which is on Sunday 27th July starting at 10:30 in Selly Oak, Birmingham. If members have not received this information, please get in touch with us so we can send you the information and relevant links. …
AGM Update
Voting Information Voting has been open for about a week for our face-to-face in person AGM on 27th July, in Birmingham. Members have received an e-mail telling them how to: Around 7% of membership have responded so far, and we thank you for your responses. We’d love to hear from more of you. Some people have registered their attendance at …