AGM Presentation – Olivia Rickmans work at Exeter (by Zoom)

AGM Presentation via Zoom

On Weds 24th August at 7pm Andrew Crosby and Emma Baple will give us an overview of the work that Olivia Rickman did for her PhD via Zoom. We funded part of Olivia’s PhD at Exeter between 2016 and 2019. There should be time for some questions and answers afterwards. If you wish to attend please ask for details of …

AGM Presentation – Benefits Overview (by Zoom)

AGM Presentation via Zoom

On Weds 10th August at 7pm Janet McBride will give us an overview of disability and other related benefits via Zoom. There should be time for some questions and answers afterwards. If you wish to attend please ask for details of the Zoom link.  

AGM 2022 Voting underway

News

Our AGM is coming up on 16th July via Zoom to make it accessible to people who cannot travel. We’ve electronic voting in advance again this year. Members should check their e-mails for a link to vote. Please have your say in how we are run!

AGM 2022

The group has reflected on the digital AGMs held during Coronavirus restrictions. Whilst many people who attend enjoy socialising, the key benefit of digital AGMs is that it opens up the AGM to all members with an internet connection. This makes the AGM accessible to a larger proportion of membership compared with those able to travel to a physical meeting …

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AGM 2022

News

The Group AGM will be via Zoom on Sat 16th July 2022

YouTube: Falls with HSP

The second of our AGM presentations, Falling with HSP, presented by Coralie Seary is also available on our YouTube Channel.

YouTube – Mindfulness

Ray Owen talked to the group on 28th August about Mindfulness, Acceptance and Values. The recording of this is now on our Youtube Channel.

2021 AGM on YouTube

HSP Support Group 2021 Virtual AGM

Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease