All our 2024 AGM presentations are now on our YouTube channel -why not pop over and watch?
https://www.youtube.com/@ukhsp-spasticparaplegia #HSP #HereditarySpasticParaplegia #RareDisease
Harini Jeyakumar presented her study into the Epidemiology of HSP in England and Northern Ireland, focussing on mental health outcomes. She completed for her dissertation in her Masters of Public Health degree. – https://www.youtube.com/watch?v=ARMtXWg0EOE
Estelle Marshall presented her study of people with HSP around diagnosis and treatment. She completed this study as part of her Masters – https://www.youtube.com/watch?v=f-hobnlRk3w
Dalila Marra talks about the essay that she wrote for the Beacon student voice competition in 2023. – https://www.youtube.com/watch?v=Iq_zpLM9kOw