In October Tom Bell raised money for us by running a marathon in full Viking gear. You can listen to him talking to BBC Radio about this: https://www.bbc.co.uk/sounds/play/p0ggjnq8 If you’d like to donate to this, use this Just Giving link: https://www.justgiving.com/page/tomvikingmarathon
Mobility Aids
Interested to hear about the different types of mobility aid someone with HSP might need?
Compassion Therapy
There is a new video on our YouTube channel – how compassion therapy might help people with HSP.
Feb 24: Everest Base Camp Trek
Jason Main and Gavin will be trekking to Everest Base Camp in February 2024. You can sponsor Jason and Gavin here: https://www.justgiving.com/page/jasonmain Jason says: I will be supporting a cause very close to my family, Hereditary Spastic Paraplegia (HSP) Support Group. In short HSP is a diagnosis that covers a range of rare genetic disorders caused by one or more gene …
Jan 24: Arctic Dog Sledding
Emma is fundraising for the group by completing 200km dog sledding in Sweden in January 2024. You can sponsor her here: https://www.justgiving.com/fundraising/emmasarcticadventure Emma says: My son has HSP and it’s a really difficult condition as it’s degenerative so the challenges get harder and harder. More research needs to be done about HSP and patient care needs and support from health …
Milford Afternoon Tea meeting report
19 November 2023
As our guest speaker for the meeting, we were very pleased to welcome Professor Sue Lanham-New, who is a Registered Public Health Nutritionist, from the University of Surrey.
Rocking Horse Auction
On Wednesday 8th November you can bid in an auction for a rocking horse made by our member, Terry Duffy.
Birmingham meeting report
15 October 2023
A lovely sunny Sunday brought 14 of us together at The Kenrick Centre in Harborne for our autumn get-together at 12 noon, where we enjoyed a tasty buffet lunch with refreshments.
Yorkshire 10 miler
Nick Garrett has been taking part in running events through 2023 to raise money for the group. His next run in the Yorkshire 10 miler on October 15th. You can sponsor him here: https://www.justgiving.com/fundraising/nick-garrett2 Nick says: I am running multiple events in 2023. for Hereditary Spastic Paraplegia Support Group because I have been diagnosed with this condition. I have been …