October 30, 2020
Use EasyFundraising to raise money for free
October 16, 2020
You can fundraise for the group with Amazon Smile
October 5, 2020
A Eureka Moment makes a complete set of AGM presentations on our YouTube channel.
September 19, 2020
Trustees decided at a recent meeting it was inappropriate to re-start face-to-face meetings until at least after the flu season.
August 14, 2020
There is a new video on our YouTube channel – Dr Gita Ramdharry talks about physical activity and rehabilitation in HSP
August 9, 2020
On Tuesday 11th Aug at 13:30 Gita Ramdharry will talk about rehabilitation and physical activity in HSP
August 2, 2020
The video of Dr Channa Hewamadduma’s presentation is now on our YouTube channel
July 30, 2020
Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Sat 1st August at 11:00 (BST). All are welcome to attend!
July 27, 2020
Lily Rice and Peter Bateman receive their awards
July 26, 2020
The recording of our successful digital AGM is the perfect launch for our YouTube channel.