Happy Christmas to our members, our followers, and anyone with an interest in the worldwide #HereditarySpasticParaplegia community! We held a lovely Zoom call yesterday, reaching out to any of our members who was by themselves, or feeling a bit down.
Declutter & Fundraise!
Declutter your house of books, games, CDs and DVDs and raise money for the group
Zoom presentation 21st Nov.
This weekend (21st Nov 16:30 GMT) Dr Hande Ozdinler will present to the group using Zoom. You are welcome to join – please ask for the link
Lightning Talk
Our chair is taking part in the lightning talk round 3 at #RareShowcase2020 on Thursday 19th November. Hear him talking about using technology to identify the needs of those with #HereditarySpasticParaplegia. More details here: https://www.findacure.org.uk/rare-disease-showcase/
Milford Zoom meeting report
8th November 2020
On November 8th, not wanting to miss out on a celebration, fourteen of us raised a glass, cup or mug in honour of twenty years of the Milford meetings. When face to face meetings return, hopefully in 2021, we’ll celebrate together.
