Day1: Members have got us off to a good start on our 1000 mile challenge – three were out on the first day! 7miles in manual wheelchairs and 31miles by bike. We’re almost at Newquay! #HSP1000 https://hspgroup.org/hsp-1000-mile-challenge/
First 5 miles – Lily Rice
Women’s WCMX World Champion Lily Rice got the #HSP1000 Mile Challenge off to a fantastic start.
2021 AGM on YouTube
Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease
YouTube Channel Name
We have now passed 100 subscribers on our YouTube channel. This means we get to choose our own URL for the channel. https://www.youtube.com/c/UKHSPHereditarySpasticParaplegia The new name should make it easier for people to find us in searches, and remember who we are!
Wales area Zoom meeting report
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.
Voting for AGM
This is our first year with postal and electronic voting for our AGM. We’re starting to get some votes in, and this is a reminder for members to check their e-mails and vote! AGM is 3rd July. Votes must be cast by 26th June. #HSP #HereditarySpasticParaplegia #RareDisease