New YouTube video

It is another busy weekend for the group. The video from Henry Houlden’s talk on 17July is now on our YouTube channel https://www.youtube.com/watch?v=HtgQO-_vNBQ The next presentation is in an hour-or-so’s time – everyone is welcome. Also, the #HSP1000 challenge continues to run really well! – thank you to everyone!

Mike’s 100 miles

Mike has set himself the personal challenge of 100 miles in one month, as part of the HSP 1000 Mile Challenge! & he is doing brilliantly!

1000 miles – week 2

1000 mile challenge week 2 route

Week 2 of #HSP1000 has been updated on the page. We’ve now completed 377 miles and have raised £2156. 19 people have travelled in 12 different ways. New methods this week are: mobility scooter, walking sticks, horse-riding and rowing. We are roughly following the A49, we have been through Shrewsbury and are now almost at Whitchurch. Some lovely stories have …

Now on Instagram

News

The group has a new Instagram page, so you can follow us there if you wish! https://www.instagram.com/ukhspgroup/

Handbike adventures – Laura

Laura hand bike 1

Huge congratulations to Laura who completed a 17-mile sportive route from Prideaux place in Padstow, on a tri-cycle handbike

1000 Mile Challenge – Week 1

HSP 1000 Mile Challenge

The first week of the 1000 mile challenge finished on Friday 16th July. We have got off to a really good start! Overall we have travelled 169 miles or 272 km. 10 members and the family of a former member have taken part, using seven different modes of transport. The distances The mode of transport with the greatest distance is …

1000 miles, Day 1

Day1: Members have got us off to a good start on our 1000 mile challenge – three were out on the first day! 7miles in manual wheelchairs and 31miles by bike. We’re almost at Newquay! #HSP1000 https://hspgroup.org/hsp-1000-mile-challenge/

First 5 miles – Lily Rice

Lily Rice

Women’s WCMX World Champion Lily Rice got the #HSP1000 Mile Challenge off to a fantastic start.

2021 AGM on YouTube

HSP Support Group 2021 Virtual AGM

Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease