31st January 2021
We shared a lovely Zoom with 12 UK members, one completely new to the Support Group, some from different regions, and several of our regular members too.
AGM Highlights Video
There is a new video on our YouTube channel – a 6 minute highlight video of our AGM. Viewers can understand what we do and how we work. Enjoy!
Happy New Year
Wishing all our members, followers and anyone with an interest in #HereditarySpasticParaplegia a Happy New Year
Happy Christmas
Happy Christmas to our members, our followers, and anyone with an interest in the worldwide #HereditarySpasticParaplegia community! We held a lovely Zoom call yesterday, reaching out to any of our members who was by themselves, or feeling a bit down.
Declutter & Fundraise!
Declutter your house of books, games, CDs and DVDs and raise money for the group
Zoom presentation 21st Nov.
This weekend (21st Nov 16:30 GMT) Dr Hande Ozdinler will present to the group using Zoom. You are welcome to join – please ask for the link
