Our Chair, Adam Lawrence, has been busy at his work recently, with two different things being published today. These both talk about HSP, so are useful in raising awareness of HSP and disability. On the AtkinsRéalis careers website he has written a blog post about how adjustments at work have helped, and how his work with their staff network for …
Birmingham Get-together
April 13th 2024
A bright sunny day brought 25 lovely folks to the Birmingham get-together. We had 14 regulars. 3 couldn’t make it due to illness, and 11 newcomers!! – 6 of whom have HSP.
Milford April Meeting
6th April 2024
Following the Carer’s time together, we were pleased to welcome Tel Martin from AGEUK as guest speaker. Tel’s topic was ‘Planning for The Future’, which is being pioneered in Surrey.
Birmingham post-Christmas lunch
It was good to have 16 of us getting together for a pub lunch towards the end of January. Everyone said how lovely it was to meet up in person and to be able to share news, experiences and information.
Viking Marathon
In October Tom Bell raised money for us by running a marathon in full Viking gear. You can listen to him talking to BBC Radio about this: https://www.bbc.co.uk/sounds/play/p0ggjnq8 If you’d like to donate to this, use this Just Giving link: https://www.justgiving.com/page/tomvikingmarathon
Mobility Aids
Interested to hear about the different types of mobility aid someone with HSP might need?
Compassion Therapy
There is a new video on our YouTube channel – how compassion therapy might help people with HSP.
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Feb 24: Everest Base Camp Trek
Jason Main and Gavin will be trekking to Everest Base Camp in February 2024. You can sponsor Jason and Gavin here: https://www.justgiving.com/page/jasonmain Jason says: I will be supporting a cause very close to my family, Hereditary Spastic Paraplegia (HSP) Support Group. In short HSP is a diagnosis that covers a range of rare genetic disorders caused by one or more gene …