Today is International Day of Persons With Disabilities. We support people with Hereditary Spastic Paraplegia (HSP), a rare progressive neurological condition. At first, symptoms are small. As things progress, the lives of people with HSP change. Many will reach a point where they call themselves disabled. That acceptance point can be difficult in the context of negative societal views about …
Milford Afternoon Tea meeting report
2nd November 2025
Holding meetings in the Autumn comes with the added difficulty of early dark evenings and changeable weather.
Report from HSP Meeting Scotland
25 October 2025
The first Scottish face to face meeting was held in Williamwood High School on the south side of Glasgow on Saturday 25 October. Some of us had met previously on zoom meetings but this was the first time we had actually physically met each other.
Hitchin report
25 October 2025
7 of us meet at the Orange Tree pub just outside Hitchin. A few more hoped to come but were prevented from attending at the last minute while several others had prior commitments but hope to be able to come in future.
Birmingham October Meeting Report
18 October 2025
The Birmingham meeting was held on Saturday 18th October. It was arranged to be just a chatty get-together but we had a call from Doctor Jacob Day – who is a neurology doctor currently half way through a PHD at Exeter university, researching HSP with Andrew Crosby and his team.
Feering, Colchester Meeting Report
12 October 2025
We met at Feering Community Centre in Essex for our Autumn gathering on 12th October this year. We were joined by three new people and chatted over tea, coffee and biscuits.
Latest Newsletter
The latest edition of our newsletter, NewsLink is now available. https://hspgroup.org/wp-content/uploads/2025/10/HSP-Newslink-issue-58-%E2%80%93-final.pdf Have a read to hear about the latest activities in our world. You can find out more about upcoming HSP books, key links to useful places, world HSP day on October 17th, upcoming meetings, and reports about meetings, participating in research projects, and a couple of members stories.
World HSP Day – October 17th
On Friday October 17th, Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS) communities around the world are uniting to raise awareness about these rare diseases. This year, 17 associations and 3 foundations from 15 countries are participating in a global campaign. If you are interested in why this date has been chosen, read on EuroHSP: https://www.eurohsp.eu/events How Can I …
Medway Neuro-Tech 25
4th September 2025
To celebrate ten years of the Medway Neurological Network, the group organised the Medway Neuro-Tech 25 at the Universities at Medway, Chatham.
YouTube Update
AGM Recordings The recording of our 2025 AGM has now been uploaded to our YouTube channel. You can view this directly on this link: https://www.youtube.com/watch?v=Po9WgBxyOPc We have also added a set of links to all our recorded AGMs on our AGM page, so if you wished to review the AGMs for any year since 2020, you can do so here: …