Interested to hear about the different types of mobility aid someone with HSP might need?
Compassion Therapy
There is a new video on our YouTube channel – how compassion therapy might help people with HSP.
Upcoming Presentations
Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.
Fundraising Stories
We have set up a new page here to allow us to let you know about the amazing things which people are getting up to raising money for us. You have several options:
Railway ticket office closure
Proposals to close ticket offices at railway stations are currently being consulted on. If you wish to share your views then you have until 1st September 2023 to make them known. If you live in London: https://www.londontravelwatch.org.uk/ticket-offices-have-your-say/ If you live elsewhere in England: https://www.transportfocus.org.uk/train-station-ticket-office-consultation/ Two key issues are around the availability of tickets for people with disabilities from ticket machines, …
Presentations on Saturday
This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease
AGM on Saturday
The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease
AGM – 15th July
News: Our 2023 AGM will be on Saturday 15th July, at 10:30.This will be through Zoom to allow as many members to attend.#HSP #RareDisease #HereditarySpasticParaplegia