This page is a quick reminder of the different videos that we have on our YouTube channel. This post is written on 14th October. We had 3 presentations yesterday, but those have not yet been edited and uploaded. Please check our YouTube channel for the latest updates.
Access the channel directly: https://www.youtube.com/@ukhsp-spasticparaplegia
The original reason for the channel was to be a repository for our digital AGMs. This table has a link to all our AGMs.
However, we also recorded the presentations made by invited speakers, and these contain a wealth of useful information which readers may like to digest:
| Year | Event | Link |
| 2023 | Compassion therapy | https://www.youtube.com/watch?v=3X5recS_guY |
| 2023 | Choosing mobility aids | https://www.youtube.com/watch?v=0MhAzE5SMCI |
| 2023 | Student voice – diagnostic odyssey | https://www.youtube.com/watch?v=_82bgjNPo8E |
| 2022 | Molecular basis of HSP | https://www.youtube.com/watch?v=Mfk6qap2ric |
| 2022 | Overview of benefits | https://www.youtube.com/watch?v=XgAImXb5YI0 |
| 2021 | Mindfulness, acceptance and values | https://www.youtube.com/watch?v=KnaXYQFqpXc |
| 2021 | Falling with HSP | https://www.youtube.com/watch?v=f68yaDzYtvQ |
| 2021 | HSP Genes in UK and building a registry | https://www.youtube.com/watch?v=HtgQO-_vNBQ |
| 2020 | HSP – A eureka moment | https://www.youtube.com/watch?v=c54r3h-Zans |
| 2020 | Rehabilitation and physical activity in HSP | https://www.youtube.com/watch?v=VVEi0VZdtS0 |
| 2020 | Insights from large HSP cohort | https://www.youtube.com/watch?v=s3qZqLnNpBY |
There are also highlights videos from our 2020 AGM and presentations, and a range of short videos from our 1000 mile challenge. Please enjoy!
We also have some playlists created which have relevant videos: https://www.youtube.com/@ukhsp-spasticparaplegia/playlists. The playlists are updated on an ad-hoc basis, but are:
- Those with HSP – videos from people around the world with HSP. Collated as a reminder that HSP doesnt have to stop people living.
- HSP information – A selected number of videos giving information about HSP.
- SP Foundation Videos – the USA HSP group have been following a similar YouTube trajectory as us, although their journey started a few years before ours
- Potato Pants Festival – some videos from the earlier potato pants festivals.
We’d be delighted to hear suggestions for other videos to add to our playlists.