26th January 2022
We have a separate meeting for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
21st November 2021
Catching up with those who usually join us at Milford was a pleasure, plus welcoming a new couple.
Thursday 18th November 2021
The meetings committee have been wanting to get parents & carers of children, young people & dependant adults with hsp together for a long time.
11 November 2021
Although face to face meetings are held in Norwich and at Feering, near Colchester, in non-covid times, this zoom gathering was expanded to include the whole of East Anglia.
4 November 2021
You may wonder why we would have a separate meeting for these two types of HSP. It’s because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
31st October 2021
This was the third Zoom meeting we have held and we were pleased to see some new faces of all ages, some who watched and some who stayed for part.
Saturday 16th October 2021 – 2pm
Everyone welcomed. Only four people attended this time. We welcomed our newcomer and had lots to talk about including Botox, walking aids, FES and families with HSP.
10th October 2021
The meeting started at five pm (as advertised) but I was quite disappointed that only one member showed up, even though the meeting was well advertised and John Mason sent out 42 invitations.
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.
9th May 2021
The Wales area Zoom meeting took place on Sunday 9th May at 3pm. 10 people were present for an informal chat about all things HSP.
