30th April 2022
The Hitchin Get together was held on the 30th April 2022 @ 13.30 @ the Orange Tree pub. It was the first face to face meet up since the pandemic began in 2020.
Hitchin get together report
Milford meeting report – So good!
23rd April 2022
During the afternoon, I heard these words many times. Why? So good to see each other again. So good to be able to chat and share again. So good not to be the only one with a funny walk. This last comment was surprising, but confirms the benefits of meeting with others with the same disability.
Social get together (Hitchin)
Get together @ The Orange tree pub, Hitchin, SG4 9DR. Saturday April 30th @ 13.30pm This is the first face to face ‘Hitchin’ Get together since before the pandemic began. A chance to get together, have a chat & late lunch, with fellow HSP’rs. There are no speakers at this event. Please let me know if you can attend, so we …
Zoom meeting for families with HSP
We are holding a zoom meeting for families with HSP at 1.30pm on 18th May. If the younger members of your family have HSP we would love you to join us for an informal chat. For joining details, please contact the meeting organisers Penny and June.
Milford meeting (face-to-face)
We are looking forward to holding our Milford meeting on Saturday April 23rd from 3pm until 6pm.
Calling all people of Wales, Scotland and England…
Some of us will be online to Senedd, Holyrood and Westminster in a virtual reception (replacing the previous physical events). The British Rare Disease Strategy has already been produced and yet has to be ratified by the parliaments of Wales, Scotland and N Ireland.
Sheffield – Zoom meeting
Join us for a couple of hours to make friends and have a chat! Please contact the organiser for more information and to register for the event.
Wales and Bristol Area Zoom Meeting
This is a chance for an informal chat and the opportunity to meet people who have similar experiences. Please contact the organiser for more information and to register for the event.
Wales area Zoom meeting report
20th June 2021
The Wales area Zoom meeting took place on Sunday 20th June. Even though only three members attended, we still had a lot to chat about.