Hello everyone, At our April meeting, Tel Martin will be joining us. The title of his talk is ‘Planning for Your Future‘. As you will see from his descriptor below, he is covering many aspects of what should be considered as we get older. Could be there are some aspects that our younger members would benefit from considering? We’ll see …
Mobility Aids
Interested to hear about the different types of mobility aid someone with HSP might need?
Milford Afternoon Tea meeting report
19 November 2023
As our guest speaker for the meeting, we were very pleased to welcome Professor Sue Lanham-New, who is a Registered Public Health Nutritionist, from the University of Surrey.
Birmingham meeting report
15 October 2023
A lovely sunny Sunday brought 14 of us together at The Kenrick Centre in Harborne for our autumn get-together at 12 noon, where we enjoyed a tasty buffet lunch with refreshments.
Upcoming Presentations
Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.
Scotland update July
We have not yet been able to fix a place for Face to Face meetings. We’ve been offered a room, but nobody to host the meeting, so have decided to run zooms which at least will include the Highlands and islands.
Presentations on Saturday
This weekend – our first summer presentations via Zoom. Saturday 22nd July09:00 – Ela Curic – The diagnostic journey10:00 – Cinzia Rinaldo – Spastin recovery in hereditary spastic paraplegiaAll welcome – ask for details.#HSP #HereditarySpasticParaplegia #RareDisease
AGM on Saturday
The groups AGM is on Saturday 15th July at 10:30, via Zoom.Hear about the years events, awards and trustee elections.All are welcome!#HSP #HereditarySpasticsParaplegia #RareDisease
Burnley Meeting Report
24 June 2023
We met at Mount Zion Church, in Cliviger, Burnley, and my friend helped with drinks and snacks.
One couple came, which allowed the opportunity for a more in-depth discussion. We talked about physiotherapy and plans for the future.
