People may be interested to know that the European Reference Network have just published a ‘patient journey’ for people with HSP.
Each row on the journey describes a different aspect of HSP. Headlines give details about HSP, and cover what may happen in clinic. The journey also gives some of the challenges faced by people with HSP, and some aspirational goals.
Ultimately this journey should help people with or potentially with HSP understand some things they may wish to cover with their Doctor. Equally, the journey may help Doctors consider aspects of HSP that are not often talked about in early discussions. This journey should result in better conversations between Doctors and people with HSP.