I was devastated to hear of the passing of my great friend John Mason at the end of last year. Just in case any members aren’t aware of this sad news, I thought I’d put a few words on here. As many of you will know, John was a former treasurer of the HSP Group, a role that he held for several years. We were so lucky to have found such a thorough treasurer and with some great assistance from his wife Sonya, kept our accounts up to date with great precision.
SPG 11 and SPG 15 Families Zoom Meeting Report
14 January 2026
We have a separate meeting occasionally for these types of HSP because, although they are very similar to each other, they are very different, in some ways, from other types of Hereditary Spastic Paraplegia.
Milford Afternoon Tea meeting report
2nd November 2025
Holding meetings in the Autumn comes with the added difficulty of early dark evenings and changeable weather.
Report from HSP Meeting Scotland
25 October 2025
The first Scottish face to face meeting was held in Williamwood High School on the south side of Glasgow on Saturday 25 October. Some of us had met previously on zoom meetings but this was the first time we had actually physically met each other.
Hitchin report
25 October 2025
7 of us meet at the Orange Tree pub just outside Hitchin. A few more hoped to come but were prevented from attending at the last minute while several others had prior commitments but hope to be able to come in future.
Birmingham October Meeting Report
18 October 2025
The Birmingham meeting was held on Saturday 18th October. It was arranged to be just a chatty get-together but we had a call from Doctor Jacob Day – who is a neurology doctor currently half way through a PHD at Exeter university, researching HSP with Andrew Crosby and his team.
Feering, Colchester Meeting Report
12 October 2025
We met at Feering Community Centre in Essex for our Autumn gathering on 12th October this year. We were joined by three new people and chatted over tea, coffee and biscuits.
Medway Neuro-Tech 25
4th September 2025
To celebrate ten years of the Medway Neurological Network, the group organised the Medway Neuro-Tech 25 at the Universities at Medway, Chatham.
May monthly meeting with Estelle
May 2025
Eight people joined the May monthly meeting with Estelle. This session is one of our regular, informal, Zoom meetings held on the third Tuesday of each month.
Birmingham Get-Together Report
12 April 2025A beautiful sunny day in Birmingham, brought 20 of us together (including 3 new people) for our 20th get-together. There were 4 apologies due to illness.