There is a new video on our YouTube channel – a 6 minute highlight video of our AGM. Viewers can understand what we do and how we work. Enjoy!
Happy New Year
Wishing all our members, followers and anyone with an interest in #HereditarySpasticParaplegia a Happy New Year
Happy Christmas
Happy Christmas to our members, our followers, and anyone with an interest in the worldwide #HereditarySpasticParaplegia community! We held a lovely Zoom call yesterday, reaching out to any of our members who was by themselves, or feeling a bit down.
Declutter & Fundraise!
Declutter your house of books, games, CDs and DVDs and raise money for the group
Zoom presentation 21st Nov.
This weekend (21st Nov 16:30 GMT) Dr Hande Ozdinler will present to the group using Zoom. You are welcome to join – please ask for the link
Lightning Talk
Our chair is taking part in the lightning talk round 3 at #RareShowcase2020 on Thursday 19th November. Hear him talking about using technology to identify the needs of those with #HereditarySpasticParaplegia. More details here: https://www.findacure.org.uk/rare-disease-showcase/