AGM Tomorrow

AGM Welcome

It is our 2022 AGM tomorrow morning, via Zoom. Looking forward to sharing our activities form the last year with our members!

AGM 2022 Voting underway


Our AGM is coming up on 16th July via Zoom to make it accessible to people who cannot travel. We’ve electronic voting in advance again this year. Members should check their e-mails for a link to vote. Please have your say in how we are run!


AGM 2022


The Group AGM will be via Zoom on Sat 16th July 2022

Research request – Pregnant women

The MuM-PreDiCT research group is trying to improve care for pregnant women who have multiple long-term health conditions through research. They need help to prioritise outcomes that should be reported in all studies of pregnant women with multiple long-term conditions. The group would like to hear from you if both of these factors apply to you: You have been pregnant in …

We are recruiting

Can You Help

Can you help us? We are seeking trustees to join our board.

YouTube: Falls with HSP

The second of our AGM presentations, Falling with HSP, presented by Coralie Seary is also available on our YouTube Channel.

YouTube – Mindfulness

Ray Owen talked to the group on 28th August about Mindfulness, Acceptance and Values. The recording of this is now on our Youtube Channel.

New YouTube video

It is another busy weekend for the group. The video from Henry Houlden’s talk on 17July is now on our YouTube channel The next presentation is in an hour-or-so’s time – everyone is welcome. Also, the #HSP1000 challenge continues to run really well! – thank you to everyone!