This page is a quick reminder of the different videos that we have on our YouTube channel. This post is written on 14th October. We had 3 presentations yesterday, but those have not yet been edited and uploaded. Please check our YouTube channel for the latest updates. Access the channel directly: https://www.youtube.com/@ukhsp-spasticparaplegia The original reason for the channel was to …
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Presentation Details – 13th October
We are pleased to announce that we have three presentations arranged, as outlined at our AGM. These are all on Sunday 13th October, and will be via Zoom. These presentations will also be recorded and uploaded to our YouTube channel after. 11:00 – Harini Jeyakumar – Epidemiology of Hereditary Spastic Paraplegia in England and Northern Ireland using routine health records …
AGM – Last Day of Voting
Today is the last day of voting for our AGM on Saturday 24th August. Members should let us know their thoughts.
Our Chair in the News!
Our Chair, Adam Lawrence, has been busy at his work recently, with two different things being published today. These both talk about HSP, so are useful in raising awareness of HSP and disability. On the AtkinsRéalis careers website he has written a blog post about how adjustments at work have helped, and how his work with their staff network for …
Viking Marathon
In October Tom Bell raised money for us by running a marathon in full Viking gear. You can listen to him talking to BBC Radio about this: https://www.bbc.co.uk/sounds/play/p0ggjnq8 If you’d like to donate to this, use this Just Giving link: https://www.justgiving.com/page/tomvikingmarathon
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Mobility Aids
Interested to hear about the different types of mobility aid someone with HSP might need?