Our March 2021 Newslink is on our website to read
Coronavirus Vaccine
HSP is a Neurological Condition. If you are in the UK, have HSP, and have not had your first Coronavirus vaccine, you can now book this yourself online or through 119. The UK has got to Group 6 – adults with underlying conditions which put them at higher risk of serious disease. The underlying condition list includes neurological conditions. 22 …
Webinar: Improving care of rare disease patients in Europe
European Reference Network for Rare Neurological Diseases (ERN-RND) webinar on improving care of rare diseases patients. 23rd Feb.
New Q&A Video
New video on our Youtube channel with selected highlights of the Q&A session following Prof Andrew Crosby & Dr Emma Baple talk recorded on 25th July 2020
AGM Highlights Video
There is a new video on our YouTube channel – a 6 minute highlight video of our AGM. Viewers can understand what we do and how we work. Enjoy!
Happy New Year
Wishing all our members, followers and anyone with an interest in #HereditarySpasticParaplegia a Happy New Year
Happy Christmas
Happy Christmas to our members, our followers, and anyone with an interest in the worldwide #HereditarySpasticParaplegia community! We held a lovely Zoom call yesterday, reaching out to any of our members who was by themselves, or feeling a bit down.