New video on our YouTube channel – Andrew Crosby and Emma Baple tell the group about the work their team has been doing in Exeter, including new types of HSP, partly funded by the group. This video was recorded on Weds 24th August 2022. https://www.youtube.com/watch?v=Mfk6qap2ric #HSP #RareDisease #HereditarySpasticParaplegia
Overview of UK benefits
New YouTube vIdeo – overview of UK benefits
2022 AGM on YouTube
Recording of 2022 AGM now on YouTube
YouTube: Falls with HSP
The second of our AGM presentations, Falling with HSP, presented by Coralie Seary is also available on our YouTube Channel.
YouTube – Mindfulness
Ray Owen talked to the group on 28th August about Mindfulness, Acceptance and Values. The recording of this is now on our Youtube Channel.
2021 AGM on YouTube
Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. https://www.youtube.com/watch?v=JGEET9D45rU #HSP #HereditarySpasticParaplegia #RareDisease
New Q&A Video
Q&A session highlights from Dr Channa Hewamaddumas talk at the AGM in August 2020
New Q&A Video
New video on our Youtube channel with selected highlights of the Q&A session following Prof Andrew Crosby & Dr Emma Baple talk recorded on 25th July 2020
A Eureka Moment on YouTube
A Eureka Moment makes a complete set of AGM presentations on our YouTube channel.
There is a new video on our YouTube channel – Dr Gita Ramdharry talks about physical activity and rehabilitation in HSP
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