Mobility Aids

Interested to hear about the different types of mobility aid someone with HSP might need?

The molecular basis of HSP

New video on our YouTube channel – Andrew Crosby and Emma Baple tell the group about the work their team has been doing in Exeter, including new types of HSP, partly funded by the group. This video was recorded on Weds 24th August 2022. #HSP #RareDisease #HereditarySpasticParaplegia

YouTube: Falls with HSP

The second of our AGM presentations, Falling with HSP, presented by Coralie Seary is also available on our YouTube Channel.

YouTube – Mindfulness

Ray Owen talked to the group on 28th August about Mindfulness, Acceptance and Values. The recording of this is now on our Youtube Channel.

2021 AGM on YouTube

HSP Support Group 2021 Virtual AGM

Our AGM on Saturday 3rd July was a great success! – You can now watch this on our YouTube channel and catch up on the groups activities, see our awards and our #HSP1000 challenge! Thanks to everyone for taking part. #HSP #HereditarySpasticParaplegia #RareDisease

New Q&A Video

Q&A session highlights from Dr Channa Hewamaddumas talk at the AGM in August 2020

New Q&A Video

New video on our Youtube channel with selected highlights of the Q&A session following Prof Andrew Crosby & Dr Emma Baple talk recorded on 25th July 2020