AGM Presentations on YouTube

August 9, 2026

The presentations made at our AGM’s in 2025 and 2026 are now also available on our YouTube channel. You can watch these recordings: Flying scholarships for disabled people and London marathon. Ian Bennett. https://youtu.be/cPDviIOsksU Exercising with HSP. Estelle Marshall. https://youtu.be/NMIneNtzb0o Physical Activity in HSP. Renae Stefanetti. https://youtu.be/ZvOcF_gBf0s Overview of HSP, Clinical features, Management and Clinical research. Yi Ng. https://youtu.be/gcmiLkwvRW4 Re-thinking …

2026 AGM on YouTube

August 1, 2026

The recording of the 2026 AGM, held on Sunday 26th July, is now on our YouTube channel. Video highlights include: Note – at the actual AGM, we ran the AGM before lunch and the awards after lunch. The video includes both the AGM and the awards.

YouTube Update

August 17, 2025

AGM Recordings The recording of our 2025 AGM has now been uploaded to our YouTube channel. You can view this directly on this link: https://www.youtube.com/watch?v=Po9WgBxyOPc We have also added a set of links to all our recorded AGMs on our AGM page, so if you wished to review the AGMs for any year since 2020, you can do so here: …

Reminder of YouTube

October 14, 2024

This page is a quick reminder of the different videos that we have on our YouTube channel. This post is written on 14th October. We had 3 presentations yesterday, but those have not yet been edited and uploaded. Please check our YouTube channel for the latest updates. Access the channel directly: https://www.youtube.com/@ukhsp-spasticparaplegia The original reason for the channel was to …

Mobility Aids

November 30, 2023

Interested to hear about the different types of mobility aid someone with HSP might need?

The molecular basis of HSP

August 27, 2022

New video on our YouTube channel – Andrew Crosby and Emma Baple tell the group about the work their team has been doing in Exeter, including new types of HSP, partly funded by the group. This video was recorded on Weds 24th August 2022. https://www.youtube.com/watch?v=Mfk6qap2ric #HSP #RareDisease #HereditarySpasticParaplegia