Interested to hear about the different types of mobility aid someone with HSP might need?
Compassion Therapy
There is a new video on our YouTube channel – how compassion therapy might help people with HSP.
Upcoming Presentations
Coming up – our next presentations, on Zoom. On 2nd September Ian Bennett shares his views on selecting mobility aids, and on 3rd September Hannah Gilbert talks about compassion therapy. Please ask us for more details.
The molecular basis of HSP
New video on our YouTube channel – Andrew Crosby and Emma Baple tell the group about the work their team has been doing in Exeter, including new types of HSP, partly funded by the group. This video was recorded on Weds 24th August 2022. https://www.youtube.com/watch?v=Mfk6qap2ric #HSP #RareDisease #HereditarySpasticParaplegia
AGM Presentation – Olivia Rickmans work at Exeter (by Zoom)
On Weds 24th August at 7pm Andrew Crosby and Emma Baple will give us an overview of the work that Olivia Rickman did for her PhD via Zoom. We funded part of Olivia’s PhD at Exeter between 2016 and 2019. There should be time for some questions and answers afterwards. If you wish to attend please ask for details of …
AGM Presentation – Benefits Overview (by Zoom)
On Weds 10th August at 7pm Janet McBride will give us an overview of disability and other related benefits via Zoom. There should be time for some questions and answers afterwards. If you wish to attend please ask for details of the Zoom link.
Zoom presentation 21st Nov.
This weekend (21st Nov 16:30 GMT) Dr Hande Ozdinler will present to the group using Zoom. You are welcome to join – please ask for the link
Digital Meeting, 1st August
Dr Channa Hewamadduma: HSP – Insights from a large regional cohort of patients. Sat 1st August at 11:00 (BST). All are welcome to attend!
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