22nd October 2022
The meeting went ahead despite the muddle of Meta Rejigging of Facebook, and several zoomed including some new. We spent a lot of time talking about rollators, bikes and other rural mobility aids that could cope with tough surfaces as well as what adjustments Motorbility might make.
16th October 2022
We met at Feering Community Centre, near Colchester in Essex on Sunday, 16th October 2022. Most of us were regular attenders but we were delighted to be joined, for the first time, by one of our members from Cambridge.
We are pleased to announce our first group social meeting, on Saturday 8th October 2022 in Birmingham. Members should find further details of the day in their e-mails. We need members to confirm attendance by 26th Sept so that we can ensure appropriate catering. The main objective of the day is for socialising with other members. However, there are also …
New video on our YouTube channel – Andrew Crosby and Emma Baple tell the group about the work their team has been doing in Exeter, including new types of HSP, partly funded by the group. This video was recorded on Weds 24th August 2022. https://www.youtube.com/watch?v=Mfk6qap2ric #HSP #RareDisease #HereditarySpasticParaplegia
It is our 2022 AGM tomorrow morning, via Zoom. Looking forward to sharing our activities form the last year with our members!
Our AGM is coming up on 16th July via Zoom to make it accessible to people who cannot travel. We’ve electronic voting in advance again this year. Members should check their e-mails for a link to vote. Please have your say in how we are run!
