Raise funds on Black Friday
Lightning Talk
Our chair is taking part in the lightning talk round 3 at #RareShowcase2020 on Thursday 19th November. Hear him talking about using technology to identify the needs of those with #HereditarySpasticParaplegia. More details here: https://www.findacure.org.uk/rare-disease-showcase/
Milford Zoom meeting report
8th November 2020
On November 8th, not wanting to miss out on a celebration, fourteen of us raised a glass, cup or mug in honour of twenty years of the Milford meetings. When face to face meetings return, hopefully in 2021, we’ll celebrate together.
A Eureka Moment on YouTube
A Eureka Moment makes a complete set of AGM presentations on our YouTube channel.
Coronavirus – Update on Meetings
Trustees decided at a recent meeting it was inappropriate to re-start face-to-face meetings until at least after the flu season.
New Video!
There is a new video on our YouTube channel – Dr Gita Ramdharry talks about physical activity and rehabilitation in HSP
Next Presentation
On Tuesday 11th Aug at 13:30 Gita Ramdharry will talk about rehabilitation and physical activity in HSP
