12 April 2025A beautiful sunny day in Birmingham, brought 20 of us together (including 3 new people) for our 20th get-together. There were 4 apologies due to illness.
Milford Afternoon Tea
5 April 2025
With such glorious weather we were delighted to welcome twenty people to our meeting, including some new faces.
Colchester Branch Meeting Report
23 March 2025
We met at Feering, near Colchester in Essex on 23rd March 2025 for our Spring meeting. There were 16 of us from across the region, chatting over tea, coffee and biscuits and listening to our speaker, Bob Barnett, who came from REMAP Essex North to talk about the work REMAP volunteers do for people with disabilities.
Medway Neurological Network – Rare Disease Day
21st February 2025
The Medway Neurological Network organised a get together for Rare Disease Day, Friday 28th February, a week early on Friday 21st February.
Birmingham meeting report
1 February 2025
After a very cold, stormy, wet January, it was so nice for the Birmingham Group to meet up for a pub lunch at The Red Lion at Earlswood.
Meeting (near Leeds/York)
Saturday 25th January (RSVP by Saturday 18th January) at Lotherton Hall Off Collier Lane, Lotherton Ln, Aberford, Leeds LS25 3EB https://museumsandgalleries.leeds.gov.uk/lotherton/ Café | Zoo | Playgrounds | Deer Park and Grounds Saturday 27th April at 11.30 for refreshments at 12.00 at the Café on the estate The aim and purpose of the meeting: The format will be warm, welcoming, and …
Milford April Afternoon Tea 2025
Our Spring Milford meeting is on Saturday April 5th from 3 pm until 6 pm. We’ll be meeting at The Clockhouse, Chapel Lane, Milford, Surrey GU8 5EZ. Our speaker will be Kay Warren from Coloplast Ltd. Kay is aiming to give a presentation of products and an outline of the service provided by Charter Healthcare for incontinence, amongst other concerns. …
Birmingham meeting
We would like to invite you to the next get-together at The Kenrick Centre, Mill Farm Road, Harborne. B17 0QX on Saturday 12th April 12 noon – 3.30pm.
Feering, Colchester Meeting Report
20th October 2024
We met, as usual, at Feering Community Centre on a Sunday afternoon. As we arrived, Superman and a Disney Princess also arrived to surprise the guests at a four year old’s birthday party in the larger hall! Sadly, they didn’t join us!
Birmingham meeting report
12th October 2024
The Birmingham group had a lovely gathering on Saturday 12th October. 23 people came along, 15 of whom were people with the condition, 2 of whom were newcomers and one recently diagnosed.